A list of the main guidelines and resources for researchers on involving members of the public in research.  Further information is available on the INVOLVE website and the National Institute for Health Research (NIHR) website has information for members of the public interested in getting involved in research.

Guidance

Patient and Public involvement in health and social care research: a Research Design Service (RDS) handbook for researchers to help you plan and carry out public involvement in research (NIHR RDS 2014)
Briefing notes for researchers
Guidance for researchers on how to involve members of the public in health and social care research (INVOLVE 2014)
Involving children and young people in research: Top tips and essential key issues for researchers: Guidance for researchers developed with children and young people (INVOLVE 2016)
Guidance for involving members of the public in interview panels, committees and other panel membership:
This guidance has been produced for healthcare organisations and individuals in healthcare, that are contemplating having representation from members of the public on recruitment panels, committees, or other types of panels (such as audit panels, complaints panels, promotion panels). The guidance is also intended to be a useful resource for public individuals, if they are invited to become a public (or patient or lay) member of a panel or committee. (NIHR RDS YH 2016)
Public involvement in research and research ethics committee review: This statement has been developed by the Health Research Authority (HRA) and INVOLVE for researchers who will be submitting applications for ethical review to provide clarity and guidance on public involvement in research and the requirements of Research Ethics Committee (REC) review (May 2016).
Resources on payment and reimbursement: with the latest updates on public involvement and welfare benefits payments and a cost calculator for budgeting for public involvement in research. (INVOLVE)
Benefits advice service for involvement: The NIHR in partnership with others supports a free, confidential service which offers personal advice and support on how payment of fees and expenses for public involvement might affect people in receipt of state benefits.(INVOLVE)
NIHR ‘Make it Clear’ campaign with information, guidance and resources on writing in plain English.
Top tips for public involvement in research:
A short list of tips to help researchers facilitate meaningful public involvement in research (NIHR RDS YH)
South Yorkshire Strategic Local Priority Group Patient and Public Involvement Glossary of Research terms:
A list of commonly used research terms with a clear explanation of their meaning. (NIHR RDS YH)

Reports

Going the Extra Mile: A strategic review of public involvement in the National Institute for Health Research (NIHR March 2015).
Public Involvement in Care Home Research Workshop Report:
A resource for researchers who are new to public involvement in care homes for older people and want to involve residents, their relatives and friends in developing or guiding their research. (NIHR RDS YH 2013)

Videos

View our videos for guidance on how to develop:
Appropriate and meaningful public involvement in research
A good quality Plain English Summary.

Organisations

INVOLVE - A national advisory group that supports greater public involvement in NHS, public health and social care research.

Resources

RDS Yorkshire and the Humber public involvement database
:
Search our database to find contact details of health-related voluntary groups in the Yorkshire and the Humber region that are interested in working with clinicians and researchers to develop research proposals and grant applications.
invoDIRECT – a national online resource that is a directory of networks, groups and organisations that support public involvement in research
People in Research – with opportunities for members of the public to get involved in research.
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