The Patient and Public Involvement (PPI) Forum for the Research Design Service Yorkshire and the Humber (RDS YH)
Purpose: to ensure that there is PPI in the development and delivery of all the RDS YH’s core PPI activities, and to monitor progress.
Reports to: RDSYH Executive Board
Terms of reference
- To provide a PPI input into decisions at RDS YH Board level
- To provide advice on potential PPI strategic collaborations between the RDS YH and local external organisations
- To provide input into the PPI learning events delivered by the RDS YH
- To provide input into the PPI pages of the RDS YH website
- To contribute to the reviews of applications for the RDS YH PPI funding award
- To contribute to the PPI section of the RDS YH annual report
As a Forum:
- we welcome everyone equally, and agree to make the Forum open and accessible
- we support and train our members
- we understand and respect confidentiality, and agree not to discuss, inappropriately, the information provided to members
- we ensure everyone’s right to speak
- we respect the opinions of others
- we listen to each other and respond to each other with sensitivity
- we provide accurate and practical information.
Samaira is the Patient and Public Involvement (PPI) Lead for the Research Design Service Yorkshire and the Humber. Samaira chairs the PPI forum and also oversees the PPI funding awards. She is based in Sheffield and also works for INVOLVE for one day a week as a Public Involvement Manager. Having worked for the Research Design Service in Yorkshire and the Humber for over four years Samaira has a pool of experience in Public Involvement. This includes providing advice on embedding meaningful Public Involvement throughout research applications and working collaboratively with members of the public on various different projects both locally and regionally. Samaira has a background in working with children and young people and is particularly interested in inclusive, diverse public involvement.
Dr Wendy Baird is the Director of the RDS for Yorkshire and the Humber as well as the Director of ScHARR Short Course Unit. Her research has largely been related to assessment of health care needs in people with a disability with particular emphasis on oral health, multiple sclerosis and older people in rural areas. Most recently her research portfolio has been in the field of multiple sclerosis around the establishment of a population based register of people with MS in the UK.
Dr Ade Adebajo is a Consultant Physician in Rheumatology at Barnsley Hospital NHS Foundation Trust and is also an Honorary Senior Lecturer and Associate Director of Teaching at the University of Sheffield Medical School. His main research interest is in the field of Musculoskeletal Health Services Research.
He chairs the South Yorkshire Patient and Public Involvement Strategy Group, which is a collaboration between the Research Design Service (RDS), the Comprehensive Local Research Network (CLRN) and the Collaborations for Leadership in Applied Health Research Care (CLAHRC). He is a member of INVOLVE.
Diagnosed with Head and Neck Cancer in 2002, Christine went on to make a good recovery and build on previous personal experience of chronic illness (lupus), voluntary sector activity and a professional background in further and higher education to become a tutor in communication skills to medical undergraduates, and subsequently into academic research.
A University of Leeds graduate, she is currently employed there as a user research lead and honorary research assistant within the Psychosocial Oncology and Clinical Practice Research Group. The study she is working on is a Macmillan Cancer Support funded grant competition winning project examining the benefits of user mentor support for recently diagnosed head and neck cancer patients and carers in the difficult period when discharged home to outpatient status following first in -hospital treatment. She is also user advisor/collaborator to other academic research projects and studies.
Current local regional and national user group memberships include the Yorkshire Cancer Network, the National Cancer Research Institute Consumer Liaison Group and Head and Neck Survivorship Subgroup, National Cancer Information Network Head and Neck Information Pathways and Patient Reference ,Peer Review etc. Other PPI involvements are at the Universities of Leeds and Huddersfield, where she also teaches part-time in health professional education. Christine is working to encourage development and change in academic and health research practice: moving forward from research done to users, to research done with and by users.
Dr Rosemary Barber is an Honorary Senior Research Fellow at the University of Sheffield, School of Health and Related Research (ScHARR), Section of Public Health. Her research interests are focussed on public involvement in research and also mental health, reflecting her background as a clinical psychologist. She is a member of the Medical Research Council’s Public Panel and is also an Associate Member of INVOLVE.
Andrea Broadway Parkinson
Andrea’s interest in influencing policy and practice and ‘PCPIE’ (Patient, Carer, Public Involvement and Engagement) activities stems from 28 plus years as an incomplete spinal cord injured person following a Road Traffic Accident in 1986. She has had much previous and current experience of using health services. Following studies in Social Policy (York, 1992) and Health Education (York St John, 1994), post 16/Adults Teaching/Training (1995) and a 5 year career as a British Paralympic level Wheelchair Tennis athlete (Atlanta 1996), she has run her own part time freelance disability consultancy, ‘Dispel’, based in York since 1998. She has experience of working in the voluntary, public and private sectors nationally, regionally and locally and focused latterly in “expert patient” and patient experience/quality focused work. Key roles currently include ‘Expert Patient/Advisor’ with Yorkshire Ambulance Service; Lay Review work for NIHR (Research for Patient Benefit Prog)., member of PURSUN (Pressure Ulcer Research Service User Network) c/o University of Leeds and PhOEBE (Pre Hospital Outcomes for Evidence Based Evaluation) Project PPI Reference Group member c/o ScHARR, University of Sheffield. She has an active interest in self management/self care, user led and peer support approaches and is passionate about ‘patient partnership’ and ‘service user/consumer’ involvement as a means of securing safe, efficient improvements in services and practices which are truly patient/service user/consumer centred. “I’m delighted to be a RDS PPI Forum Lay Member in order to proactively influence the health research agenda regionally and nationally and ‘add value’ from a patient/lay perspective”. Andrea Broadway-Parkinson, November 2014.
Beryl Darlison is the representative of Sheffield Emergency Care Forum (SECF) a PPI group based in Sheffield. SECF has been in existence for nearly ten years and is independent of other PPI interests. It is comprised of individual members with an interest in health matters, representatives of the Ambulance Service and several trainee doctors at various stages of training. Beryl, now retired, has a background in education having taught in schools and later teaching adults in a variety of settings. She is currently vice-chairman of SECF. She has been involved with a variety of research studies as a member of steering committees or as co-applicant.
Philip Gleeson’s first job was as a Patternmaker at West Yorkshire foundries, gaining a degree in engineering, when they closed he went into warehouse and distribution, eventually becoming a Transport Director at a large distribution company. Due to illness 20+ years ago he now uses a wheelchair. Whilst ill he completed a degree in the arts at Open University to keep his mind as active as possible. Being an Engineer at heart has given him a real interest in research as he has found that this is another way of designing and making more efficient the machine which in research is the human body. Phil is currently the chair for the charity ‘Leeds involving people’ and the co-chair for the ‘Better lives Leeds Board’. Apart from this he also is a Hub representative for Leeds City Council and a Trustee for the Leeds access committee and Disability council. Phil has a broad spectrum of interest in research and has a strong belief in a completely accessible world to ensure that everyone is treated equally regardless of age and ability.
Dr Natasha Mitchell has a background in health psychology and health services research and is based in the Department of Health Sciences at The University of York. She is an experienced trial co-ordinator and qualitative researcher. She has an interest in pragmatic randomised trials and incorporating qualitative methods into trials.