Public Involvement searchable database

Public Involvement searchable database

This database, which will be regularly updated, contains the contact details of health-related voluntary groups in the Yorkshire and the Humber region that are interested in working with clinicians and researchers to develop research proposals and grant applications. The database is searchable by city and by disease/health area. All listed groups have agreed to have their contact details contained in this database. Researchers are encouraged to make contact with relevant groups directly. Once contact has been made, the group(s) will decide whether or not they wish to be involved with the development of the research.

You can also search the INVOLVE Database.

Group NameHealth / Disease AreaContact NameContact AddressContact Details
Anaphylaxis Campaign, SheffieldInflammatory and immune systemLynne Regent, Chief ExecutiveEmail: info@anaphylaxis.org.uk
Aspergers Youth Group (AYG)Karena CollinsEmail: aycforyou@gmail.com
Tel: 01302 320879
www.ayc.btck.co.uk
Aurora CancerLynne RothwellThe Aurora Wellbeing Centres, The Old Library, Memorial Avenue, Worksop, Nottinghamshire, S80 2BPEmail: davidrothwell@icloud.com
Tel: 07889 988 037
Barnsley Churches Drop In ProjectSubstance misuseCaroline HydeTemperance House, Pitt Street, Barnsley, S70 1ALEmail: BCDP@live.co.uk
Tel: 01226 321877
Barnsley Group (MS Society)NeurologicalAlan WallEmail: Barnsley@mssociety.org.uk
Tel: 07399 876 532
www.mssociety.org.uk/barnsley
Twitter: @Barnsley MS Society
Facebook: Barnsley MS Society Support Group
Beacon South YorkshireSubstance misuse/mental healthLynda McDermott19 Doncaster Road, Barnsley, S70 1TH (above Parkgate Mobility)Email: info@beaconsy.org.uk
Tel: 01226 814 012
Cardiovascular Research Patient PanelCardiology, cardiothoracic surgery, thoracic surgeryCharlotte CulverChesterman Wing, Northern General Hospital, Sheffield, S5 7AUEmail: Charlotte.Culver@sth.nhs.uk
www.sheffieldclinicalresearch.org/about/our-directorates/cardiology/patient-panel
Choice SupportLearning disabilitySonia KuzniarUnit 5 Clarke Hall Farm, Aberford Road, Wakefield, WF1 4ALEmail: Sonia.Kuzniar@choicesupport.org.uk
Tel: 01924 299399
Community Elders Panel - Patient and Public involvementFrail/elderlyJackie PalmerClinical Research Office Sheffield, D Floor, Royal Hallamshire Hospital, Glossop Road, Sheffield S10 2JFEmail: jacqueline.palmer@sth.nhs.uk
Disability Sheffield Centre for Independent LivingPan-impairmentEmily Morton, CEO/Val Bowen, Information OfficerThe Circle, 33 Rockingham Lane, Sheffield, S1 4FWEmail: emily.morton@disabilitysheffield.org.uk/val.bowen@disabilitysheffield.org.uk
Tel: 0114 253 6750
www.disabilitysheffield.org.uk
Doncaster Stammering Association StammeringBob AdamsEmail : dsagroup@hotmail.co.uk
Tel: 07944 550 540
Facebook: Doncaster Stammering Association
HeadwaysCancer/hair lossChristine FirthPatients Library, Ground Floor, Weston Park Hospital, Whitham Road, Sheffield, S10 2SJEmail: christine.firth@sth.nhs.uk
Tel: 0114 226 5390
Hearing Voices & Paranoia Self Help GroupMental healthPeter BullimoreLimbrick Centre, Limbrick Road, Sheffield, S6 2PEEmail: peterbullimore@yahoo.co.uk
Tel: 0114 271 8210
Hepatitis C Social Work ServiceInfectionThea WilliamsAdult Care & Support, The Forge Centre, Floor 1 Howden House, Union Street, Sheffield, S1 2SHEmail: thea.williams@sheffield.gov.uk
Tel: 0114 273 5245/07920 087 556
Lay Advice for Diabetes and Endocrine Research (LADDER) PanelDiabetes & EndocrinologySharon CauntM Floor, Room M135, Royal Hallamshire Hospital, Glossop Road, Sheffield, S10 2JFEmail: sharon.caunt@sth.nhs.uk
Lay Advisory Panel for Oral & Dental ResearchOral and DentalRobert BoltThe School of Clinical Dentistry, University of Sheffield, 19 Claremont Crescent, Sheffield, S10 2TAEmail: r.bolt@sheffield.ac.uk
Lay Expert Advisory Panel (LEAP) for HIVHIVCharlie HughesAcademic Directorate of Communicable Diseases, Sheffield Teaching Hospitals NHS Trust, Royal Hallamshire Hospital, Sheffield, S10 2JFEmail: charlie.hughes@sth.nhs.uk
Leger MEM.E.Mike ValentineRedmond Centre, High St, Carcroft, Doncaster, DN6 8DPEmail: mike@danum.me.uk
Tel: 01302 787353
www.leger.me.uk
Live InclusiveKaren Smith - CEOBentley Resource Centre, High Street, Bentley, Doncaster, DN5 0AAEmail: karen@liveinclusive.co.uk
Tel: 01302 592 400
www.liveinclusive.co.uk
Maan - Somali Mental Health SheffieldMental health / BME / health and wellbeing promotion / community development Sharmarke Ismail (Coordinator)8 Paradise Street, Sheffield, S1 2DFEmail: admin.maan@tiscali.co.uk
Tel: 0114 2758556
Website currently under construction
Online Public Advisory PanelVariousDaniel LawrenceClinical Research & Innovation Office, Royal Hallamshire Hospital, D Floor, Glossop Road, Sheffield, S10 2JFEmail: daniel.lawrence2@sth.nhs.uk
Palliative Care Studies Advisory Group (PCSAG)Provides advice and guidanceClare GardinerSchool of Nursing & Midwifery, The University of Sheffield, Barber House Annexe, 3a Clarkehouse Road, Sheffield, S10 2LAEmail : c.gardiner@sheffield.ac.uk
Tel : 0114 222 2038
www.invo.org.uk/communities/invodirect-org/palliative-care-studies-advisory-group-pcsag/?keyword=palliative&region=uk
Parkinson’s UK, Sheffield BranchNeurologicalVal Heap10 Woodholm Road, Sheffield, S11 9HTEmail: v.heap@sheffield.ac.uk
Tel: 0114 262 0468
www.parkinsons.org.uk/sheffield
Parkinson's UK, Barnsley and District BranchNeurologicalPhilip Thompson55 Keresforth Hall Road, Barnsley, S70 6NLEmail: info@barnsleyparkinsons.org.uk
Tel: 01226 730418
www.barnsleyparkinsons.org.uk
Patient and Public Panel for Hepatitis and Community InfectionsHepatitis B & C/community infections including TB/C-difficile/influenza/meningitisTracey SuttonRoom 319, 3rd Floor, Broomcross Building, Whitham Road, Sheffield, S10 2SJEmail: tracey.sutton@sth.nhs.uk
Tel: 0114 2711889
Rotherham and Barnsley MindMental healthRachel SiddalArcadia House, 72 Market St, Barnsley, S70 1SNEmail: contactus@rbmind.co.uk
Tel: 01226 211 188
Rotherham Hard of Hearing SocietyEarMrs Christine Brown135 West Bawtry Road, Rotherham, S60 2XQEmail : cab.oakridge@btinternet.com
Sheffield & District Afro Caribbean Community Association (SADACCA)BMEOlivier Tsemo, Director48 The Wicker, Sheffield, S3 8JBEmail: admin@sadacca.co.uk
Tel: 0114 275 3479
Sheffield Addiction Recovery Research Panel (ShARRP)Drug & Alcohol Use and TreatmentAndy IrvingRoom 3012, Health Services Research Section, ScHARR, University of Sheffield, Regent Court, Regent Street, Sheffield, S1 4DAEmail: a.d.irving@sheffield.ac.uk
Sheffield Coronary SocietyCardiovascularBen AndersonEmail: ben1710@googlemail.com
Tel: 07946 081 224
Sheffield Diabetes UK GroupMetabolic and endocrineVal StokesEmail: sheffielddiabetesgroup@gmail.com
Tel: 07812 538 012
Sheffield Down Syndrome Support GroupNeurological/ congenital disordersJune Smith29 Brentwood Road, Sheffield, S11 9BUEmail: juneksmithuk@yahoo.co.uk
Sheffield Emergency Care Forum (SECF)Pre-hospital, Urgent and Emergency CareEnid HirstEmail: enid38hirst@gmail.com
www.secf.org.uk
Sheffield University of the Third Age (SU3A)Older adultsJenny GraafEmail: secretary@sheffieldu3a.org.uk
Sheffield Women's Counselling and Therapy ServiceWomen's health / mental healthKatherine Myles (Chief Executive Officer)44 Daniel Hill, Sheffield, S6 3JFEmail: office@swcts.org.uk
Tel: 0114 275 2157
www.swcts.org.uk
Twitter: twitter.com/swctsuk
Facebook: www.facebook.com/SheffieldWomensCounselling
South Yorkshire Dementia Research Advisory Group (SYDEM RAG)Dementia / cognitive impairmentJane McKeown / Jackie PalmerClinical Research and Innovation Office Sheffield, Royal Hallamshire Hospital, D Floor, Glossop Road, Sheffield, S10 2JF Email: sydemrag@sheffield.ac.uk
Tel: 0114 2265412
www.sydemrag.group.shef.ac.uk
South Yorkshire Motor Neurone Disorders Research Advisory Group (SMND RAG)Neurological / MNDAnnette TaylorDepartment of Neuroscience, The University of Sheffield, 385a Glossop Road, Sheffield, S10 2HQEmail: smndrag@sheffield.ac.uk
www . smndrag.group.shef.ac.uk
Twitter: @SMNDRAG
Facebook: https://www.facebook.com/groups/163778267471471/
Specialised Rehabilitation Lay Advisory PanelSpinal Cord Injury and Specialised RehabilitationDebby HawkinsSheffield Teaching Hospitals, Room 911, Osborn Building, NGH, Herries Road, Sheffield, S5 7AUEmail: debby.hakwins@sth.nhs.uk
The Basement Recovery ProjectSubstance misuseMichelle FosterBasement House, 10 Carlton Street, Halifax, HX1 2ALEmail: michellef0@btopenworld.com
Tel: 01422 383063
www.thebasementproject.org.uk
The Lay Advisory Panel for Bone ResearchBone / joint healthSelina Bratherton/Simon Bowles/Julie WalkerUniversity of Sheffield, Academic Unit of Bone Metabolism, Department of Oncology & Metabolism, Metabolic Bone Centre, Northern General Hospital, Sheffield, S5 7AUEmail: s.bratherton@sheffield.ac.uk/sbowles1@sheffield.ac.uk/julie.walker4@sth.nhs.uk
Tel: 0114 215 9691
The Reproductive Health Research Public Advisory PanelObstetrics / gynaecology / neonatologyClare PyeRoom 30, Level 4, Jessop Wing, Tree Root Walk, Sheffield, S10 2SFEmail: Clare.Pye@sth.nhs.uk
Tel: 0114 2268194
Therapeutics & Palliative Care Patient PanelVarious therapy servicesCarolyn TaylorSheffield Teaching Hospitals, 23 Claremont Crescent, Sheffield, S10 2TAEmail: carolyn.taylor@sth.nhs.uk
Yorkshire and Humber Consumer Research PanelCancerJacqui GathEmail: jgath@blueyonder.co.uk
www.yhcrp.org.uk
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