Public Involvement searchable database
This database contains the contact details of health-related voluntary groups in the Yorkshire and Humber region that are interested in working with clinicians and researchers to develop research proposals and grant applications. The database is searchable by location and by disease/health area.
All listed groups have agreed to have their contact details contained in this database. Researchers are encouraged to make contact with relevant groups directly. Once contact has been made, the group(s) will decide whether or not they wish to be involved with the development of the research.
This database will be updated regularly to ensure the most up to date contact details are included.
Group Name | Health / Disease Area | Contact Name | Contact Address | Contact Details |
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Alopecia Lay Research Panel | Dermatology, immunology, psychology, long-term conditions | Niels Bootsma | PO Box 341, Shipley, BD18 9EH | Email: research@alopecia.org.uk |
Anaphylaxis Campaign, Sheffield | Inflammatory and immune system | Lynne Regent, Chief Executive | Email: info@anaphylaxis.org.uk | |
Aspergers Youth Group (AYG) | Karena Collins | Email: aycforyou@gmail.com Facebook: Aspergers Youth Group | ||
Aurora | Cancer | Lynne Rothwell | The Aurora Wellbeing Centres, The Old Library, Memorial Avenue, Worksop, Nottinghamshire, S80 2BP | Email: lynnerothwell@aurorawellbeing.org.uk Tel: 07889 988 037 |
Barnsley Group (MS Society) | Neurological | Victoria Quinn | Email: Barnsley@mssociety.org.uk Tel: 07399 876 532 www.mssociety.org.uk/barnsley Twitter: @Barnsley MS Society Facebook: Barnsley MS Society Support Group |
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Beacon South Yorkshire | Substance misuse/mental health | Lynda McDermott | 19 Doncaster Road, Barnsley, S70 1TH (above Parkgate Mobility) | Email: info@beaconsy.org.uk Tel: 01226 814 012 www.beaconsy.org.uk |
Cardiovascular Research Patient Panel | Cardiology, cardiothoracic surgery, thoracic surgery | Helen Denney | Chesterman Wing, Northern General Hospital, Sheffield, S5 7AU | Email: h.denney@nhs.net www.sheffieldclinicalresearch.org/about/our-directorates/cardiology/patient-panel |
Choice Support | Learning disability | Sonia Kuzniar | Choice Support, Room 16, The Junction, Charles Street, Horbury, WF4 5FD | Email: Sonia.Kuzniar@choicesupport.org.uk Tel: 01924 299399 |
Community Elders Panel - Patient and Public involvement | Frail/elderly | Anne Silvester | 23 Claremont Crescent, Sheffield, S102TA | Email: anne.silvester@nhs.net |
Dementia Enquirers | Dementia | Philly Hare | Email: philly@myid.org.uk rachael@myid.org.uk Tel: 07720 538851 https://www.dementiavoices.org.uk/dementia-enquirers/ |
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Disability Sheffield Centre for Independent Living | Pan-impairment | Emily Morton, CEO/Val Bowen, Information Officer | The Circle, 33 Rockingham Lane, Sheffield, S1 4FW | Email: emily.morton@disabilitysheffield.org.uk/val.bowen@disabilitysheffield.org.uk Tel: 0114 253 6750 www.disabilitysheffield.org.uk |
Hearing Voices & Paranoia Self Help Group | Mental health | Peter Bullimore | Limbrick Centre, Limbrick Road, Sheffield, S6 2PE | Email: peterbullimore@yahoo.co.uk Tel: 07590837359 |
Hepatitis C Social Work Service | Infection | Thea Williams | Adult Care & Support, The Forge Centre, Floor 1 Howden House, Union Street, Sheffield, S1 2SH | Email: thea.williams@sheffield.gov.uk Tel: 0114 273 5245/07920 087 556 |
Lay ADvice for Diabetes and Endocrine Research (LADDER) Panel | Diabetes & Endocrinology | Sharon Caunt | M Floor, Room M135, Royal Hallamshire Hospital, Glossop Road, Sheffield, S10 2JF | Email: Sharon.Caunt@nhs.net https://www.sheffieldclinicalresearch.org/for-patients-public/how-to-get-involved/the-diabetes-endocrinology-directorate/ |
Lay Advisory Panel for Oral & Dental Research | Oral and Dental | Robert Bolt | The School of Clinical Dentistry, University of Sheffield, 19 Claremont Crescent, Sheffield, S10 2TA | Email: r.bolt@sheffield.ac.uk |
Lay Expert Advisory Panel (LEAP) for HIV | HIV | Charlie Hughes | Academic Directorate of Communicable Diseases, Sheffield Teaching Hospitals NHS Trust, Royal Hallamshire Hospital, Sheffield, S10 2JF | Email: charlie.hughes@nhs.net |
Leger ME | ME/CFS, Post Viral Fatigue Syndrome (PVFS), Fibromyalgia syndrome (FMS) and any chronic condition where Fatigue is the primary. Post Covid Fatigue is also covered. | Mike Valentine | Linney Community Care Centre. Rear of Weston Road Shops, Weston Road, Balby, Doncaster, DN4 8NF | Email: mike@danum.me.uk Tel: 01302 787353 http://www.danum.me/ |
Online Public Advisory Panel | Various | Daniel Lawrence | Clinical Research & Innovation Office, Royal Hallamshire Hospital, D Floor, Glossop Road, Sheffield, S10 2JF | Email: daniel.lawrence12@nhs.net |
Palliative Care Studies Advisory Group (PCSAG) | Provides advice and guidance | Clare Gardiner | School of Nursing & Midwifery, The University of Sheffield, Barber House Annexe, 3a Clarkehouse Road, Sheffield, S10 2LA | Email: c.gardiner@sheffield.ac.uk Tel: 0114 222 2038 www.invo.org.uk/communities/invodirect-org/palliative-care-studies-advisory-group-pcsag/?keyword=palliative®ion=uk |
Parkinson’s UK, Sheffield Branch | Neurological | Val Heap | 10 Woodholm Road, Sheffield, S11 9HT | Email: valheap@outlook.com Tel: 0114 262 0468 www.parkinsons.org.uk/sheffield Facebook: Parkinson’s Sheffield |
Parkinson's UK, Barnsley and District Branch | Neurological | Doris Wragg | 21 Carr Lane, Tankersley, Barnsley S75 3BE | Email: info@barnsleyparkinsons.org.uk Tel: 01226 744670 www.barnsleyparkinsons.org.uk |
Rotherham and Barnsley Mind | Mental health | Rachel Siddal | Osborne House, 1-2 Highfield, Doncaster Road, Rotherham, S65 1DZ | Email: contactus@rbmind.co.uk Tel: 01709 919929 |
Rotherham Hard of Hearing Society | Ear | Mrs Christine Brown | 135 West Bawtry Road, Rotherham, S60 2XQ | Email: cab.oakridge@btinternet.com |
Sheffield & District African and Caribbean Community Association (SADACCA) | BME | Olivier Tsemo, Chief Executive Officer Email: olivier.tsemo@sadacca.co.uk | 48 Wicker, Sheffield, S3 8JB | Email: admin@sadacca.co.uk Tel: 0114 275 3479 http://www.sadacca.co.uk/ Facebook, Twitter, Instagram account: SADACCA LIMITED |
Sheffield Addiction Recovery Research Panel (ShARRP) | Predominantly drug and alcohol use and recovery (but with overlap and expertise in mental health and gambling addiction too) | Beth Collinson | Email: bethcollinsonwork@gmail.com Twitter: https://twitter.com/sharrpresearch |
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Sheffield Diabetes UK Group | Metabolic and endocrine | Shirley Sherwood (Chair) | Email: DiabetesUK.Sheffield@gmail.com Tel: 0742 938 5554 (If we don't answer, please leave a message and we will get back to you). | |
Sheffield Emergency Care Forum (SECF) | Pre-hospital, Urgent and Emergency Care | Linda Abouzeid | Email: secfenquiries@gmail.com http://www.secf.org.uk | |
u3a Sheffield | Older adults | Anna Harvey | 56 Chelsea Road, S11 9BR | Email: secretary@sheffieldu3a.org.uk / annaharvey1954@gmail.co.uk |
Sheffield Women's Counselling and Therapy Service | Women's health / mental health | Sarah Smart (Chief Executive Officer) | 289 Abbeydale Road, Sheffield, S7 1FJ | Email: office@saffronsheffield.org.uk Tel: 0114 275 2157 www.saffronsheffield.org.uk Twitter: twitter.com/saffronsheff Facebook: www.facebook.com/saffronsheff Instagram: https://www.instagram.com/saffronsheff/ LinkedIn: https://www.linkedin.com/company/saffron-sheffield |
Dementia Research Advice in South Yorkshire (DRAiSY) | Dementia / cognitive impairment | Jane McKeown / Eve Dawber | Clinical Research and Innovation Office Sheffield, Royal Hallamshire Hospital, D Floor, Glossop Road, Sheffield, S10 2JF | Email: draisy@sheffield.ac.uk Tel: 0114 2711628 https://draisy.sites.sheffield.ac.uk/ |
The Reproductive Health Research Public Advisory Panel | Obstetrics / gynaecology / neonatology | Clare Pye | Room 30, Level 4, Jessop Wing, Tree Root Walk, Sheffield, S10 2SF | Email: Clare.Pye1@nhs.net Tel: 0114 2268194 |
Across the Care Group PPI Panel | Research based in the community or within services that work across primary and secondary care | Anne Silvester (PPI Research Coordinator) | Sheffield Teaching Hospitals, 23 Claremont Crescent, Sheffield, S10 2TA | Email: anne.silvester@nhs.net |
Yorkshire and Humber Consumer Research Panel | Cancer | Jacqui Gath | Email: jgath@blueyonder.co.uk www.yhcrp.org.uk |