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Public Involvement searchable database – Research Design Service Yorkshire and Humber

Public Involvement searchable database

Public Involvement searchable database

This database contains the contact details of health-related voluntary groups in the Yorkshire and Humber region that are interested in working with clinicians and researchers to develop research proposals and grant applications. The database is searchable by location and by disease/health area.

All listed groups have agreed to have their contact details contained in this database. Researchers are encouraged to make contact with relevant groups directly. Once contact has been made, the group(s) will decide whether or not they wish to be involved with the development of the research.

This database will be updated regularly to ensure the most up to date contact details are included.

Group NameHealth / Disease AreaContact NameContact AddressContact Details
Alopecia Lay Research PanelDermatology, immunology, psychology, long-term conditionsNiels BootsmaPO Box 341, Shipley, BD18 9EHEmail:
Anaphylaxis Campaign, SheffieldInflammatory and immune systemLynne Regent, Chief ExecutiveEmail:
Aspergers Youth Group (AYG)Karena CollinsEmail: Facebook: Aspergers Youth Group
Aurora CancerLynne RothwellThe Aurora Wellbeing Centres, The Old Library, Memorial Avenue, Worksop, Nottinghamshire, S80 2BPEmail:
Tel: 07889 988 037
Barnsley Group (MS Society)NeurologicalVictoria QuinnEmail:
Tel: 07399 876 532
Twitter: @Barnsley MS Society
Facebook: Barnsley MS Society Support Group
Beacon South YorkshireSubstance misuse/mental healthLynda McDermott19 Doncaster Road, Barnsley, S70 1TH (above Parkgate Mobility)Email:
Tel: 01226 814 012
Cardiovascular Research Patient PanelCardiology, cardiothoracic surgery, thoracic surgeryHelen DenneyChesterman Wing, Northern General Hospital, Sheffield, S5 7AUEmail:
Choice SupportLearning disabilitySonia KuzniarChoice Support, Room 16, The Junction, Charles Street, Horbury, WF4 5FDEmail:
Tel: 01924 299399
Community Elders Panel - Patient and Public involvementFrail/elderlyAnne Silvester23 Claremont Crescent, Sheffield, S102TAEmail:
Dementia EnquirersDementiaPhilly HareEmail:
Tel: 07720 538851
Disability Sheffield Centre for Independent LivingPan-impairmentEmily Morton, CEO/Val Bowen, Information OfficerThe Circle, 33 Rockingham Lane, Sheffield, S1 4FWEmail:
Tel: 0114 253 6750
Hearing Voices & Paranoia Self Help GroupMental healthPeter BullimoreLimbrick Centre, Limbrick Road, Sheffield, S6 2PEEmail:
Tel: 07590837359
Hepatitis C Social Work ServiceInfectionThea WilliamsAdult Care & Support, The Forge Centre, Floor 1 Howden House, Union Street, Sheffield, S1 2SHEmail:
Tel: 0114 273 5245/07920 087 556
Lay ADvice for Diabetes and Endocrine Research (LADDER) PanelDiabetes & EndocrinologySharon CauntM Floor, Room M135, Royal Hallamshire Hospital, Glossop Road, Sheffield, S10 2JFEmail:
Lay Advisory Panel for Oral & Dental ResearchOral and DentalRobert BoltThe School of Clinical Dentistry, University of Sheffield, 19 Claremont Crescent, Sheffield, S10 2TAEmail:
Lay Expert Advisory Panel (LEAP) for HIVHIVCharlie HughesAcademic Directorate of Communicable Diseases, Sheffield Teaching Hospitals NHS Trust, Royal Hallamshire Hospital, Sheffield, S10 2JFEmail:
Leger MEME/CFS, Post Viral Fatigue Syndrome (PVFS), Fibromyalgia syndrome (FMS) and any chronic condition where Fatigue is the primary. Post Covid Fatigue is also covered.Mike ValentineLinney Community Care Centre. Rear of Weston Road Shops, Weston Road, Balby, Doncaster, DN4 8NFEmail:
Tel: 01302 787353
Online Public Advisory PanelVariousDaniel LawrenceClinical Research & Innovation Office, Royal Hallamshire Hospital, D Floor, Glossop Road, Sheffield, S10 2JFEmail:
Palliative Care Studies Advisory Group (PCSAG)Provides advice and guidanceClare GardinerSchool of Nursing & Midwifery, The University of Sheffield, Barber House Annexe, 3a Clarkehouse Road, Sheffield, S10 2LAEmail:
Tel: 0114 222 2038
Parkinson’s UK, Sheffield BranchNeurologicalVal Heap10 Woodholm Road, Sheffield, S11 9HTEmail:
Tel: 0114 262 0468 Facebook: Parkinson’s Sheffield
Parkinson's UK, Barnsley and District BranchNeurologicalDoris Wragg21 Carr Lane, Tankersley, Barnsley S75 3BEEmail:
Tel: 01226 744670
Rotherham and Barnsley MindMental healthRachel SiddalOsborne House, 1-2 Highfield, Doncaster Road, Rotherham, S65 1DZEmail:
Tel: 01709 919929
Rotherham Hard of Hearing SocietyEarMrs Christine Brown135 West Bawtry Road, Rotherham, S60 2XQEmail:
Sheffield & District African and Caribbean Community Association (SADACCA)BMEOlivier Tsemo, Chief Executive Officer Email: Wicker, Sheffield, S3 8JBEmail:
Tel: 0114 275 3479 Facebook, Twitter, Instagram account: SADACCA LIMITED
Sheffield Addiction Recovery Research Panel (ShARRP)Predominantly drug and alcohol use and recovery (but with overlap and expertise in mental health and gambling addiction too)Beth CollinsonEmail:
Sheffield Diabetes UK GroupMetabolic and endocrineShirley Sherwood (Chair)Email: Tel: 0742 938 5554 (If we don't answer, please leave a message and we will get back to you).
Sheffield Emergency Care Forum (SECF) Pre-hospital, Urgent and Emergency CareLinda AbouzeidEmail:
u3a Sheffield Older adultsAnna Harvey56 Chelsea Road, S11 9BREmail: /
Sheffield Women's Counselling and Therapy ServiceWomen's health / mental healthSarah Smart (Chief Executive Officer)289 Abbeydale Road, Sheffield, S7 1FJEmail:
Tel: 0114 275 2157
Facebook: Instagram:
​Dementia Research Advice in South Yorkshire (DRAiSY)Dementia / cognitive impairmentJane McKeown / Eve DawberClinical Research and Innovation Office Sheffield, Royal Hallamshire Hospital, D Floor, Glossop Road, Sheffield, S10 2JF Email: Tel: 0114 2711628
The Reproductive Health Research Public Advisory PanelObstetrics / gynaecology / neonatologyClare PyeRoom 30, Level 4, Jessop Wing, Tree Root Walk, Sheffield, S10 2SFEmail:
Tel: 0114 2268194
Across the Care Group PPI PanelResearch based in the community or within services that work across primary and secondary careAnne Silvester (PPI Research Coordinator)Sheffield Teaching Hospitals, 23 Claremont Crescent, Sheffield, S10 2TAEmail:
Yorkshire and Humber Consumer Research PanelCancerJacqui GathEmail: