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Resources for public involvement in research – Research Design Service Yorkshire and Humber

Resources for public involvement in research

Research Design Service Yorkshire and the Humber

Patient and Public involvement in health and social care research: a Research Design Service (RDS) handbook for researchers to help you plan and carry out public involvement in research. (2014)

Guidance for involving members of the public in interview panels, committees and other panel membership. (NIHR RDS YH 2016)

RDS Yorkshire and the Humber public involvement database
Contact details of health-related voluntary groups in the Yorkshire and the Humber region that are interested in working with clinicians and researchers to develop research proposals and grant applications.

Public Involvement in Care Home Research Workshop Report (NIHR RDS YH 2013)

South Yorkshire Strategic Local Priority Group Patient and Public Involvement Glossary of Research terms.

View our videos:

Developing appropriate and meaningful Public Involvement.
Plain English Summary.


INVOLVE is a national advisory group supporting public involvement in research.  They have a wide variety of resources on their website including:

Briefing notes for researchers on how to involve members of the public in health and social care research (INVOLVE 2014)

Involving children and young people in research: Top tips and essential key issues for researchers (INVOLVE 2016)

Public involvement in research and research ethics committee review: This statement has been developed by the Health Research Authority (HRA) and INVOLVE for researchers who will be submitting applications for ethical review to provide clarity and guidance on public involvement in research and the requirements of Research Ethics Committee (REC) review (May 2016).

Resources on payment and reimbursement with the latest updates on public involvement and welfare benefits payments and a cost calculator for budgeting for public involvement in research.

The NIHR in partnership with others supports a free, confidential service Benefits advice service for involvement: which offers personal advice and support on how payment of fees and expenses for public involvement might affect people in receipt of state benefits.

NIHR ‘Make it Clear’ campaign with information, guidance and resources on writing  in plain English.

Going the Extra Mile: A strategic review of public involvement in the National Institute for Health Research (NIHR March 2015).